Our Latest News

Anonymous surveys for NF1 patients & clinicians

Monday August 22, 2022

Are you or someone you care for affected by Neurofibromatosis Type 1 (NF1)? Do you provide healthcare for someone with NF1? We’re helping Childhood Tumour Trust learn more about the current pathway of care for people with NF1 in the UK. If you’re involved in either receiving or providing care, please consider completing our surveys. […]

ADPKD top 10 research priorities published

Monday July 25, 2022

PKD Charity and the autosomal dominant polycystic kidney disease (ADPKD) community paired up with NIHR’s James Lind Alliance on a Priority Setting Partnership (PSP). They’ve agreed their Top 10 research priorities, and have published it in BMJ Open! Have a read here. We’re pleased to have supported PKD Charity with two relevant patient-led projects; hopefully […]

PLRH quarterly: July

Monday July 4, 2022

Newsletter time! It’s been a really busy quarter for us: lots of proposal work, but also lots of behind-the-scenes development work. We look forward to sharing all with you as soon as possible! Read what we’ve been up to here, and consider joining our mailing list here.

Point-of-care and self-testing for potassium

Monday June 20, 2022

Kalium Health is a spin out company established by clinicians and academics at the University of Cambridge and Cambridge University Hospitals. The original driver of their work was a simple patient proposal to create a handheld device to reliably measure blood potassium from home. Kalium Health have made great strides so far, and are currently […]

PLRH quarterly: April

Monday April 4, 2022

Time for our April quarterly already! We share our latest rare disease stats and report on two of our new rare disease proposals! Read it here, and consider signing up to our mailing list (here).

Lithium might reduce the risk of dementia

Tuesday March 22, 2022

A massive congratulations to Dr Shanquan Chen, Dr Rudolf Cardinal and colleagues at Cambridgeshire & Peterborough NHS Foundation Trust for their latest publication: Association between lithium use and the incidence of dementia and its subtypes: A retrospective cohort study This is not a PLRH-related study, but it did arise from earlier work we did with […]