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Patient Led Research Hub

It’s all about RARE!

We’re delighted to announce our shift in focus to rare disease! Many people living with a rare disease and their families struggle with significant unmet medical needs, and few have the opportunity to be involved in research. Given that over 70% of our feasible proposals have come from small rare disease groups, we’ve decided to tailor our resources to best support this community. We’ve been working closely with Cambridge Rare Disease Network on this move, and look forward to engaging with the patient community to learn about how we can improve our service. If you have ideas about rare disease research, or would like to collaborate on a new project, please get in touch: [email protected]!


photo from Genomics England