The Patient Led Research Hub complies with the General Data Protection Regulation.
This notice applies to the Patient Led Research Hub and to https://plrh.org. We store personal data of our customers and potential customers in order to aid in the day-to-day running of our programme. If you have any requests regarding your rights under the GDPR, for example, your right to have your personal data removed, please email firstname.lastname@example.org or phone us on 01223 274570. Please note active research projects will have individual GDPR and privacy policies, as dictated by data governance and ethics committees.
Information stored includes:
• Telephone number
Uses of this information includes:
• Newsletter mailing lists
• Contact on behalf of third-party training opportunities
How and where we store your data:
• We print documents that contain identifiable information and store them securely at our office
• We maintain copies of documents and communications on our internal network
• Some information is stored with third-party providers such as our email host, analytics provider, etc.
How long do we store data?
We try to retain all data for our records and don’t purposely destroy it unless we believe it has no further use with future services.