Our Latest News
Monday February 10, 2020
Have you been diagnosed with lipodystrophy? If so, please consider completing our 5-minute, anonymous patient survey (link here)! We’d like to hear from everyone about their experience with fatigue: does this symptom affect your daily quality of life? Significantly, or maybe not at all? Your answers will help us design our new study! Please get […]
Thursday January 9, 2020
Happy New Year everyone! We’re really excited for a busy 2020, with numerous patient led projects and our first conference on its way! Our January quarterly is a catch-up on PLRH activities thus far, as well as a peak at trial outcomes from DRINK. Read the newsletter here, and sign up to the mailing list here!
Wednesday December 18, 2019
We’re hosting a patient led research conference in 2020 with Cambridge University Press and the University of Cambridge Public Engagement Team! We will showcase co-produced healthcare research with an added focus on open access publication and transparency. We would love to hear your ideas on how to present the research pathway, which speakers to invite, […]
Monday November 4, 2019
Congratulations to Ragada El-Damanawi, PKD Charity, and the entire DRINK research team for publishing their study results as an open access manuscript with QMJ! You can read the article here! DRINK was our first PLRH project: we’ve really enjoyed working with Ragada and PKD Charity, and look forward to collaborating on many more proposals!
Tuesday October 15, 2019
The Vice-Chancellor’s Research Impact and Engagement Awards were established in 2016 to recognise and celebrate excellence across the University of Cambridge. This year, two PLRH projects were nominated for the ‘collaboration’ category: My Sjögren’s Diary, and chronic pain in autosomal dominant polycystic kidney disease. Unfortunately we weren’t lucky enough to take home an award, but […]
Tuesday October 1, 2019
We are very pleased to have been awarded the 2019 University Collaboration Budget in partnership with Cambridge University Press and the University of Cambridge Public Engagement team! We aim to host a patient led research conference, showcasing co-produced healthcare research with an added focus on open access publication and transparency. We would love to hear […]