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Patient Led Research Hub

PLRH quarterly: April

2026 is flying! Check out our latest newsletter to see what’s been keeping us busy: we’re working on 9 patient-led proposals and trying to keep up with many, many fantastic events. We’re also delighted to announce that the Rare Disease Research Network (RDRN) has now formally transitioned to CamRARE’s new research pillar. We look forward to supporting their research ideas and seeing where the next chapter leads.