Patient members of Sjögren’s Cambridgeshire have been working closely with database programmers from the Cambridge Clinical Trials Unit to design My Sjögren’s Diary, and a prototype is now complete! We hosted a workshop on 19 September for Sjögren’s Cambridgeshire members to trial the website, and are now working to further refine its form and function. […]
As a recipient of the University of Cambridge Public Engagement Starter Fund (for our Ring 20 & Ketogenic Dietary Therapy project), we were invited to showcase our work at their annual Public Engagement Conference. Although this was a closed event, it was an excellent opportunity to network with public involvement and engagement colleagues across the […]
We were pleased to attend the Nesta Health 2019 The Future of People Powered Health conference, this year focused on ‘Reimagining Leadership’. Nesta always strives to make these events as inclusive and welcoming as possible, and this year was no exception. We enjoyed speakers and workshops discussing a multitude of approaches to patient-centred health and […]
Check out our latest newsletter: new PLRH documents, proposals, project updates, and publications in the works… it’s been a busy few months! Read the newsletter here, and sign up to the mailing list here!
The International Clinical Trial Center Network (ICN) was established in 2015 by the Cambridge Clinical Trials Unit (CCTU) and 9 other global partners. Its aim is to foster excellence at each stage of clinical trial development and conduct by bringing together the expertise of its members. ICN services are available to help the development of […]
The James Lind Alliance brings patients, carers and clinicians together in ‘priority setting partnerships’ (PSPs) to identify and prioritise unanswered questions within a specific diagnosis. Generally, the top questions are then used to commission new research. It’s an NIHR-funded initiative, aiming to make sure health research funders are aware of issues that matter most to […]