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Patient Led Research Hub

Our Latest News

KRUK Fellows Day 2018 award

Monday September 10, 2018

We are very proud of Dr Ragada El-Damanawi for winning the Trevor Cook award for best communicated research from a patient’s perspective, for her oral presentation on the DRINK trial at the Kidney Research UK Fellows Day! Ragada, PKD Charity and its patient members, and the Cambridge research team have done an excellent job collaborating throughout […]

ASN Kidney Week

Friday August 10, 2018

Dr Ragada El-Damanawi will be presenting her work on the DRINK trial at the upcoming American Society of Nephrology Kidney Week in San Diego! Preliminary analysis of DRINK, proposed and co-produced by the UK PKD Charity, is very promising. Watch out for her poster ‘The DRINK Randomised Feasibility Trial: Determining feasibility of Randomisation to high versus […]

My Potassium Sensor

Tuesday August 7, 2018

Would monitoring your blood potassium at home be helpful? We’d love your feedback via this 5 minute, anonymous survey to help us develop a new hand-held device, developed with Gitelman Syndrome UK and the Department of Chemistry, University of Cambridge.

new PLRH publication

Tuesday July 10, 2018

Check out our first open access PLRH commentary: Inverting the patient involvement paradigm: defining patient led research. We explain our new patient led research model, and review our early successes and challenges. Published by BioMed Central Research Engagement and Involvement journal.

Papworth collaboration

Tuesday July 10, 2018

We are pleased to announce we now collaborate with the Clinical Outreach Librarians at the Royal Papworth NHS Foundation Trust. This is a great resource for early literature reviews and feasibility assessments. We also hope to provide some training opportunities to our patient proposers.

East Anglia Regional Fellows Event 2018

Monday June 11, 2018

The PLRH was very pleased to be invited to speak at the East Anglia Regional Fellows event, hosted by THIS Institute. PLRH joined Joann Leeding, Head of Patient and Public Involve and Engagement at THIS Institute, to host the ‘Patient and public involvement in research’ workshop.