We were very pleased to take part in the Cambridge Rare Disease Summit 2017 “Re-imagining the Patient Journey!” This great event brought together patient groups, healthcare, academics, researchers, biotech companies, and the pharmaceutical industry in a spirit of collaboration, innovation and passion to re-imagine and re-invent the rare disease patient journey.
We’ve got an article in the Autumn edition of INVOLVE’s ‘NIHR Patients and the public’ newsletter! Read all about us on page 3-4 here!
We are proud to announce our director, Dr Thomas Hiemstra, has been shortlisted for the Health Enterprise East Innovation Awards, Clinical Entrepreneur category!
PLRH Director, Dr Thomas Hiemstra took part in The Kidney Quality Improvement Partnership parallel session at the UK Kidney Week conference, reporting on ‘PLRH for Renal Research’.
In August 2015, the PKD Charity highlighted the need for better pain management in ADPKD. We partnered with the Charity to run a two-day workshop with academics, medics, and patient experts to better understand the scope of chronic pain and work towards a trial design. The workshop was funded from Otsuka Pharmaceutical and NIHR Rare Diseases […]
PLRH travelled to Washington DC to attend the Patient-Centred Outcomes Research Institute (PCORI) annual meeting. This year the theme was ‘changing the conversation about health research’. This was a great networking event to meeting global colleagues working in patient involvement and engagement!
