Our Latest News

Digital Health and Care Congress 2019

Tuesday May 28, 2019

The King’s Fund 2019 Digital Health and Care Congress took place in London last week. This annual event gathers medical and social care professionals (including NHS staff, researchers, industry, and charities) to discuss how data and technology can improve the health and wellbeing of patients and the quality and efficiency of services. We were pleased […]

International Clinical Trials Day

Wednesday May 15, 2019

International Clinical Trials Day is celebrated around the world to mark the day James Lind began his famous trial into the deadly disease scurvy in 1747. The trial led to the discovery that citrus fruits high in vitamin C could prevent the disease, and paved the way for modern research into vaccines and treatments. Join […]

PLRH quarterly: April

Monday April 1, 2019

Read about what we’ve been up to so far in 2019! New collaborations, funding applications, and updates on our active patient proposals… newsletter here, and mailing list sign-up here!

r(20) Ketogenic Diet Therapy: surveys open!

Monday March 11, 2019

We’ve teamed up with Ring 20 Research and Support UK to investigate the use of ketogenic diet therapy (KDT) in Ring Chromosome 20 Syndrome. If you have any experience with either KDT or r(20), please consider completing these quick, anonymous online surveys. Open until 28 April. We will discuss our findings at a workshop in […]

McPin Foundation: transforming mental health research

Monday February 4, 2019

We are very pleased to add The McPin Foundation to our growing list of PLRH collaborators! McPin are leading experts in involving people with lived experience in mental health research. Their guidance and advice will be important not only to mental health proposals, but also to any proposal where physical symptoms impact mental health and […]

Rare Disease Day Cambridge Evening Lecture

Friday February 1, 2019

Join us for an evening with Cambridge researchers to talk about rare disease research! We’ll learn about new work in neuroscience, rheumatology, genomics, immunology and radiology. The PLRH and r(20) Research and Support UK will be there, too! Thursday, 28 February 2019 from 6:00-7:30pm at Addenbrooke’s Hospital, with a drinks reception to follow. All are […]