Our Latest News
Monday October 30, 2017
The Cambridge Biomedical Research Centre PPI team launched a new ‘Young People in Research’ programme in collaboration with the NIHR/Wellcome Cambridge CRF and the Cambridge University Hospitals NHS Trust’s Work Experience team. The programme is aimed at sixth form students interested in pursuing a career in medicine or research. The PLRH was invited to present […]
Monday October 23, 2017
We were very pleased to take part in the Cambridge Rare Disease Summit 2017 “Re-imagining the Patient Journey!” This great event brought together patient groups, healthcare, academics, researchers, biotech companies, and the pharmaceutical industry in a spirit of collaboration, innovation and passion to re-imagine and re-invent the rare disease patient journey.
Tuesday May 16, 2017
In August 2015, the PKD Charity highlighted the need for better pain management in ADPKD. We partnered with the Charity to run a two-day workshop with academics, medics, and patient experts to better understand the scope of chronic pain and work towards a trial design. The workshop was funded from Otsuka Pharmaceutical and NIHR Rare Diseases […]