Our Latest News

new PKD publication

Tuesday February 9, 2021

Check out our new publication with Dr Ragada El-Damanawi and the PKD Charity: Developing a patient-centred tool for pain measurement and evaluation in autosomal dominant polycystic kidney disease! The paper discusses how the team developed a new questionnaire-based assessment to reliably measure chronic pain in ADPKD patients. This research helped lead the way to more […]

funding success for Lipodystrophy UK proposal

Wednesday September 9, 2020

We are delighted to announce that one of our longest running projects has been awarded funding from the Addenbrooke’s Charitable Trust! Led by Lipodystrophy UK and supported by the National Severe Insulin Resistance Service and the Newcastle Centre for Fatigue Research, the LiFE study will investigate chronic fatigue in people with lipodystrophies. Unfortunately, many people […]

new proposal from Pitt Hopkins UK

Thursday April 30, 2020

Members of Pitt Hopkins UK contacted the PLRH in December 2019, interested in learning more about breathing abnormalities in Pitt Hopkins Syndrome (PTHS). We are pleased to announced we’ve now completed our feasibility assessment, and look forward to taking this project forward with Pitt Hopkins UK along with geneticists and respiratory experts from Cardiff and […]

Creative Encounters award for My Sjögren’s Diary

Tuesday April 7, 2020

Congratulations to Sjögren’s Cambridgeshire for their hard work developing My Sjögren’s Diary! The Diary is nearly complete and will be a safe, secure website and smartphone app for anyone with Sjögren’s Syndrome to log their own symptoms and medication. The group thought this would be a great way to help combat ‘brain fog’ and be […]

new Centre for Engagement and Dissemination

Wednesday April 1, 2020

The NIHR has launched a new Centre for Engagement and Dissemination (CED). The CED will replace INVOLVE, and focus on combining PPI, public engagement, participation, and research dissemination. To coincide with this launch, the NIHR have also released a new website, NIHR Evidence, to publish research summaries in a concise and accessible manner for the […]

PLRH quarterly: April

Wednesday April 1, 2020

COVID-19 has led to a significant shift in research priorities, but we wanted to share some of our successes from earlier in the year. We’re delighted to have been awarded new funding and have published a new open access manuscript, along with some brilliant new proposals that we hope to return to soon! Consider reading […]