RDRN transitions to CamRARE

In 2023 we joined CamRARE on a journey to co-create a new rare disease research platform, led and developed by the rare community. Supported by NIHR funding, we launched the Rare Disease Research Network (RDRN) the following November at RAREfest, and are now truly delighted that CamRARE has agreed to support the network as part of its new research pillar and 5 year strategy. We couldn’t think of a better home for RDRN, as CamRARE can ensure the community-led foundation is safeguarded and supported by its fantastic global network. We look forward to watching it evolve and joining future partnerships!