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Patient Led Research Hub

My Sjögren’s Diary prototype workshop

Patient members of Sjögren’s Cambridgeshire have been working closely with database programmers from the Cambridge Clinical Trials Unit to design My Sjögren’s Diary, and a prototype is now complete! We hosted a workshop on 19 September for Sjögren’s Cambridgeshire members to trial the website, and are now working to further refine its form and function.

My Sjögren’s Diary is intended to help people with primary or secondary Sjögren’s Syndrome manage their healthcare needs by tracking their symptoms and medication. In the future, My Sjögren’s Diary will also serve as a research platform, allowing interested users the ability to register for studies and enter their own data from home.

We look forward to presenting our work at the British Sjögren’s Syndrome Association conference on 5 October!