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Patient Led Research Hub

Anonymous surveys for NF1 patients & clinicians

Are you or someone you care for affected by Neurofibromatosis Type 1 (NF1)?

Do you provide healthcare for someone with NF1?

We’re helping Childhood Tumour Trust learn more about the current pathway of care for people with NF1 in the UK. If you’re involved in either receiving or providing care, please consider completing our surveys. There is one for patients/families/carers (link here), and one for healthcare professionals (link here). They can be completed online in less than 10 minutes and are completely anonymous!