We are very pleased to add The McPin Foundation to our growing list of PLRH collaborators! McPin are leading experts in involving people with lived experience in mental health research. Their guidance and advice will be important not only to mental health proposals, but also to any proposal where physical symptoms impact mental health and […]
Join us for an evening with Cambridge researchers to talk about rare disease research! We’ll learn about new work in neuroscience, rheumatology, genomics, immunology and radiology. The PLRH and r(20) Research and Support UK will be there, too! Thursday, 28 February 2019 from 6:00-7:30pm at Addenbrooke’s Hospital, with a drinks reception to follow. All are […]
We’re starting 2019 with a new PLRH newsletter! Find the first issue here, and subscribe here if you’d like to join our mailing list. Please email us with your feedback or relevant contributions for upcoming issues.
Have you taken part in Patient & Public Involvement (PPI) activities for the National Institute for Health Research (NIHR) this year? If so, please take 15 minutes to complete their anonymous survey to feedback on your experiences. The survey is open until 7 January 2019. PPI activities may include: work at an NIHR centres or […]
We are pleased to announce that our literature review and early proposal development is now supported by both the University of Cambridge Medical Library, and Royal Papworth NHS Foundation Trust Outreach Librarians. This will benefit our efficiency in developing proposals, as well as add new training opportunities for patient organisations.
We are delighted to receive a 2018 Public Engagement Starter Fund award from the University of Cambridge Public Engagement team! We collaborated with Ring 20 Research & Support UK on our application, and the funds will be used to run a workshop with academics, medics, and patient experts to develop an r(20) trial using ketogenic […]