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Patient Led Research Hub

r(20) Ketogenic Diet Therapy: surveys open!

We’ve teamed up with Ring 20 Research and Support UK to investigate the use of ketogenic diet therapy (KDT) in Ring Chromosome 20 Syndrome. If you have any experience with either KDT or r(20), please consider completing these quick, anonymous online surveys. Open until 28 April.

We will discuss our findings at a workshop in May, and aim to develop a clinical trial protocol for new interventional study.

  1. Patients, families and carers (open internationally)
  2. Healthcare professionals (open to UK)