The International Clinical Trial Center Network (ICN) was established in 2015 by the Cambridge Clinical Trials Unit (CCTU) and 9 other global partners. Its aim is to foster excellence at each stage of clinical trial development and conduct by bringing together the expertise of its members. ICN services are available to help the development of […]
The James Lind Alliance brings patients, carers and clinicians together in ‘priority setting partnerships’ (PSPs) to identify and prioritise unanswered questions within a specific diagnosis. Generally, the top questions are then used to commission new research. It’s an NIHR-funded initiative, aiming to make sure health research funders are aware of issues that matter most to […]
The King’s Fund 2019 Digital Health and Care Congress took place in London last week. This annual event gathers medical and social care professionals (including NHS staff, researchers, industry, and charities) to discuss how data and technology can improve the health and wellbeing of patients and the quality and efficiency of services. We were pleased […]
International Clinical Trials Day is celebrated around the world to mark the day James Lind began his famous trial into the deadly disease scurvy in 1747. The trial led to the discovery that citrus fruits high in vitamin C could prevent the disease, and paved the way for modern research into vaccines and treatments. Join […]
Read about what we’ve been up to so far in 2019! New collaborations, funding applications, and updates on our active patient proposals… newsletter here, and mailing list sign-up here!
We’ve teamed up with Ring 20 Research and Support UK to investigate the use of ketogenic diet therapy (KDT) in Ring Chromosome 20 Syndrome. If you have any experience with either KDT or r(20), please consider completing these quick, anonymous online surveys. Open until 28 April. We will discuss our findings at a workshop in […]