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Patient Led Research Hub

Our Latest News

INVOLVE conference: Co-production: Teasing out the Tensions

Thursday February 27, 2020

This week we were pleased to attended the latest NIHR INVOLVE conference ‘Co-production: Teasing out the Tensions’. Co-producing healthcare research with patient partners invariably presents challenges and can lead to questions about power sharing, ethics, intellectual property and how co-produced research should be shared across society. This event gathered a range of stakeholders to discuss […]

funding success for Lupus UK proposal

Friday February 21, 2020

We are delighted to announce our latest funding application to Addenbrooke’s Charitable Trust has been approved! Led by Lupus UK, this research project will investigate how people with invisible, fluctuating and long-term health conditions can be supported to remain in employment. We anticipate an August 2020 start date, and look forward to further collaboration with our […]

lipodystrophy & chronic fatigue patient survey

Monday February 10, 2020

Have you been diagnosed with lipodystrophy? If so, please consider completing our 5-minute, anonymous patient survey (link here)! We’d like to hear from everyone about their experience with fatigue: does this symptom affect your daily quality of life? Significantly, or maybe not at all? Your answers will help us design our new study! Please get […]

PLRH quarterly: January

Thursday January 9, 2020

Happy New Year everyone! We’re really excited for a busy 2020, with numerous patient led projects and our first conference on its way! Our January quarterly is a catch-up on PLRH activities thus far, as well as a peak at trial outcomes from DRINK. Read the newsletter here, and sign up to the mailing list here!

Patient Led Research Conference: share your views!

Wednesday December 18, 2019

We’re hosting a patient led research conference in 2020 with Cambridge University Press and the University of Cambridge Public Engagement Team! We will showcase co-produced healthcare research with an added focus on open access publication and transparency. We would love to hear your ideas on how to present the research pathway, which speakers to invite, […]

new DRINK publication

Monday November 4, 2019

Congratulations to Ragada El-Damanawi, PKD Charity, and the entire DRINK research team for publishing their study results as an open access manuscript with QMJ! You can read the article here! DRINK was our first PLRH project: we’ve really enjoyed working with Ragada and PKD Charity, and look forward to collaborating on many more proposals!