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Patient Led Research Hub

Our Latest News

PLRH quarterly: October

Tuesday October 1, 2019

Check out our latest newsletter: 2020 Patient Led Research conference on the way, proposal updates, and publications in the works… it’s been a busy few months! Read the newsletter here, and sign up to the mailing list here!

UK Clinical Research Collaboration: request for public involvement/engagement resources

Wednesday September 25, 2019

The PLRH represents the Cambridge Clinical Trials Unit on the UKCRC Patient and Public Involvement and Engagement (PPI&E) Task and Finish Group. The Group is now moving forward with recommendations set in its 2018 report, and is aiming to create a central PPI&E repository for Registered CTUs. Many CTUs create their own resources and training […]

My Sjögren’s Diary prototype workshop

Thursday September 19, 2019

Patient members of Sjögren’s Cambridgeshire have been working closely with database programmers from the Cambridge Clinical Trials Unit to design My Sjögren’s Diary, and a prototype is now complete! We hosted a workshop on 19 September for Sjögren’s Cambridgeshire members to trial the website, and are now working to further refine its form and function. […]

University of Cambridge Public Engagement Conference

Wednesday September 18, 2019

As a recipient of the University of Cambridge Public Engagement Starter Fund (for our Ring 20 & Ketogenic Dietary Therapy project), we were invited to showcase our work at their annual Public Engagement Conference. Although this was a closed event, it was an excellent opportunity to network with public involvement and engagement colleagues across the […]

Nesta Health 2019 The Future of People Powered Health

Monday July 15, 2019

We were pleased to attend the Nesta Health 2019 The Future of People Powered Health conference, this year focused on ‘Reimagining Leadership’. Nesta always strives to make these events as inclusive and welcoming as possible, and this year was no exception. We enjoyed speakers and workshops discussing a multitude of approaches to patient-centred health and […]

PLRH quarterly: July

Monday July 1, 2019

Check out our latest newsletter: new PLRH documents, proposals, project updates, and publications in the works… it’s been a busy few months! Read the newsletter here, and sign up to the mailing list here!