Happy 2025 everyone! We wish you a wonderful year ahead, and look forward to collaborating with many of you. Check out our latest newsletter for a recap of 2024 proposals and our newly launched Rare Disease Research Network! Sign up to our mailing list here.
Join us at CamRARE’s RAREfest 22 & 23 November at the Guildhall in Cambridge, as we launch our new co-produced Rare Disease Research Network! We can’t wait to tell you all about it and welcome you on board!!
Have a look at our latest quarterly: join RDRN as an early adopter, learn about our latest proposals, and find out where to catch us at an event!
If you sent an email to [email protected] between 13-23 September, chances are we did not receive it. Please send it again now – we’d love to hear from you, and can only apologise for the inconvenience.
Read through our July newsletter for updates on two upcoming proposals, and our community-led Rare Disease Research Network (RDRN). We’re looking for help reviewing the RDRN website, so please do get in touch if you’re interested!
Check out our April newsletter for updates on our community-led Rare Disease Research Network!
