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Patient Led Research Hub

Our Latest News

lipodystrophy & chronic fatigue patient survey

Monday February 10, 2020

Have you been diagnosed with lipodystrophy? If so, please consider completing our 5-minute, anonymous patient survey (link here)! We’d like to hear from everyone about their experience with fatigue: does this symptom affect your daily quality of life? Significantly, or maybe not at all? Your answers will help us design our new study! Please get […]

PLRH quarterly: January

Thursday January 9, 2020

Happy New Year everyone! We’re really excited for a busy 2020, with numerous patient led projects and our first conference on its way! Our January quarterly is a catch-up on PLRH activities thus far, as well as a peak at trial outcomes from DRINK. Read the newsletter here, and sign up to the mailing list here!

Patient Led Research Conference: share your views!

Wednesday December 18, 2019

We’re hosting a patient led research conference in 2020 with Cambridge University Press and the University of Cambridge Public Engagement Team! We will showcase co-produced healthcare research with an added focus on open access publication and transparency. We would love to hear your ideas on how to present the research pathway, which speakers to invite, […]

new DRINK publication

Monday November 4, 2019

Congratulations to Ragada El-Damanawi, PKD Charity, and the entire DRINK research team for publishing their study results as an open access manuscript with QMJ! You can read the article here! DRINK was our first PLRH project: we’ve really enjoyed working with Ragada and PKD Charity, and look forward to collaborating on many more proposals!

University of Cambridge Research Impact & Engagement Awards

Tuesday October 15, 2019

The Vice-Chancellor’s Research Impact and Engagement Awards were established in 2016 to recognise and celebrate excellence across the University of Cambridge. This year, two PLRH projects were nominated for the ‘collaboration’ category: My Sjögren’s Diary, and chronic pain in autosomal dominant polycystic kidney disease. Unfortunately we weren’t lucky enough to take home an award, but […]

University Collaboration Budget success!

Tuesday October 1, 2019

We are very pleased to have been awarded the 2019 University Collaboration Budget in partnership with Cambridge University Press and the University of Cambridge Public Engagement team! We aim to host a patient led research conference, showcasing co-produced healthcare research with an added focus on open access publication and transparency. We would love to hear […]