In 2024 we were contacted by the British Columbia Support for People and Patient-Oriented Research and Trials (BC SUPPORT) Unit – they were keen to understand how the PLRH supports patient-led research, as they aim to expand their own service. We were happy to be interviewed as part of their work to understand challenges and […]
Happy 2025 everyone! We wish you a wonderful year ahead, and look forward to collaborating with many of you. Check out our latest newsletter for a recap of 2024 proposals and our newly launched Rare Disease Research Network! Sign up to our mailing list here.
Join us at CamRARE’s RAREfest 22 & 23 November at the Guildhall in Cambridge, as we launch our new co-produced Rare Disease Research Network! We can’t wait to tell you all about it and welcome you on board!!
Have a look at our latest quarterly: join RDRN as an early adopter, learn about our latest proposals, and find out where to catch us at an event!
If you sent an email to [email protected] between 13-23 September, chances are we did not receive it. Please send it again now – we’d love to hear from you, and can only apologise for the inconvenience.
Read through our July newsletter for updates on two upcoming proposals, and our community-led Rare Disease Research Network (RDRN). We’re looking for help reviewing the RDRN website, so please do get in touch if you’re interested!
