In August 2015, the PKD Charity highlighted the need for better pain management in ADPKD. We partnered with the Charity to run a two-day workshop with academics, medics, and patient experts to better understand the scope of chronic pain and work towards a trial design. The workshop was funded from Otsuka Pharmaceutical and NIHR Rare Diseases […]
PLRH travelled to Washington DC to attend the Patient-Centred Outcomes Research Institute (PCORI) annual meeting. This year the theme was ‘changing the conversation about health research’. This was a great networking event to meeting global colleagues working in patient involvement and engagement!
