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Patient Led Research Hub

Our Latest News

new PLRH publication

Tuesday July 10, 2018

Check out our first open access PLRH commentary: Inverting the patient involvement paradigm: defining patient led research. We explain our new patient led research model, and review our early successes and challenges. Published by BioMed Central Research Engagement and Involvement journal.

Papworth collaboration

Tuesday July 10, 2018

We are pleased to announce we now collaborate with the Clinical Outreach Librarians at the Royal Papworth NHS Foundation Trust. This is a great resource for early literature reviews and feasibility assessments. We also hope to provide some training opportunities to our patient proposers.

East Anglia Regional Fellows Event 2018

Monday June 11, 2018

The PLRH was very pleased to be invited to speak at the East Anglia Regional Fellows event, hosted by THIS Institute. PLRH joined Joann Leeding, Head of Patient and Public Involve and Engagement at THIS Institute, to host the ‘Patient and public involvement in research’ workshop.

DRINK protocol paper

Wednesday May 9, 2018

The DRINK research team has published their protocol: Randomised controlled trial of high versus ad libitum water intake in patients with autosomal dominant polycystic kidney disease: rationale and design of the DRINK feasibility trial with BMJ Open.  

UK Clinical Research Collaboration PPI&E report

Tuesday May 1, 2018

Laura Mader joined the UK Clinical Research Collaboration (UKCRC) Patient and Public Involvement and Engagement (PPI&E) Task and Finish Working Group, representing the PLRH and CCTU. The group aimed to assess current use and resources for PPI&E across registered clinical trials units, developing an action plan for collaborative working within the UKCRC network. The final […]

INVOLVE Guidance on co-producing a research project

Saturday March 10, 2018

NIHR’s INVOLVE has produced a new guidance document for co-production in research. The PLRH was happy to contribute to this project by taking part in a interview with the development team in March 2017. You can access the final report here.