We are thrilled to finally launch our project aiming to build a new, community-led rare disease research network! We’ve partnered up with CamRARE and are now asking for people within the rare disease community (people living with a rare condition, families, carers, patient representatives, advocates….) to get in touch if they’re interested. We’re hoping community […]
Learn more about our new CamRARE partnership, perhaps apply for one of our new Public Involvement roles, and get a quick update on two of our patient-led proposals! Lots of great stuff happening this year! Read it here. Sign up to our mailing list here.
