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Patient Led Research Hub

NIHR Public Partnership funding success!

We are very excited to finally be able to share our NIHR Public Partnership news! In December 2022 we submitted an application with CamRARE (Cambridge Rare Disease Network) to work with the rare disease community (people living with a condition, their families and carers, patient representatives, advocates) to create a new rare disease research network. We’re delighted to announce we were successful, and can’t wait to kick-off in July! If you’re interested in learning more, send an email to [email protected]!