New NF1 publication!

We are delighted to share a new peer-reviewed publication exploring the healthcare experiences of NF1 families and healthcare providers. ‘Alone on our NF1 island’ was co-authored by Childhood Tumour Trust and Dr Shaowen Ju, and supported by the PLRH. The paper describes the unmet need for better care guidelines and NF1 education for both families and healthcare providers.