Chronic Daytime Fatigue in Lipodystrophy
Lipodystrophy is a group of genetic or acquired disorders where the body is unable to produce and maintain healthy fat tissue. Lipodystrophy UK contacted the PLRH with a ‘top 10’ list of research priorities in July 2016. We worked with the patient membership through an online, anonymous survey to learn more about the diagnosis and further refine the research questions. We also met with medical experts from the National Severe Insulin Resistance Service at Addenbrooke’s Hospital. Together we prioritised research into chronic daytime fatigue for familial partial lipodystrophy (FLPD) patients. Many patients feel their chronic fatigue is not diagnosed or treated properly, despite its severe impact on quality of life.
Chronic daytime fatigue is difficult to study as there are limited suitable outcome measures. However, despite a few setbacks, we are keen to progress with this proposal!