Helping to overcome pain in polycystic kidney disease: an observational study of patient experience
Following the success with DRINK, PKD Charity submitted a second proposal to the PLRH, focusing on chronic pain interventions in autosomal dominant polycystic kidney disease (ADPKD). Chronic pain affects 60% of ADPKD patients and can severely impact quality of life. This is a high priority for patients but unlikely to receive industry funding.
The PLRH, PKD Charity, 8 patients and international nephrologists held a workshop in May 2017 to explore the topic and consider feasible trial designs. We are awaiting the results from a pain questionnaire conducted within DRINK before composing our funding application.